His birthday brings back memories that flood my heart with utter joy and sheer terror.
Thus was my experience the night my son was born at 28 weeks, 2 pounds 13 ounces. It was a normal pregnancy. Until January 1, 2000 when I went into pre-term labor while we were visiting my in-laws in Buffalo, NY. I still couldn't believe I was in labor when the doctor told me that I was indeed contracting. I had skipped the chapter on Pre-Term labor in my book. I wished that I hadn't as I'm a research junkie.
The labor was stopped after an agonizingly long night receiving medication that made my body feel on fire from the inside out. And I loathe being hot. I was given shots to help my baby's lungs mature more rapidly. Did I mention that I was terrified of needles? After five days in the hospital, I was pretty much de-sensitized.
All was well on January 4th and I was to go home the next day. Back to Pennsylvania where my husband needed to return to work. But that night, labor pains returned and wouldn't go away. By 11 p.m. at night I was 4 cm dilated. Wheeled to the Labor and Delivery Room, I was then put on a table that was then tilted so that my head was toward the floor. Pressure off my cervix. It didn't help. I begged and pleaded for an epidural. I was told it was too late. I was never brave about having a baby. My childbirth classes were to start the following week! I shouted to the nurse that I didn't know how to breathe. I hadn't learned yet. I had ALWAYS counted on the epidural. As each contraction twisted me with fear and the greatest pain I've ever known, I still was able to hear my baby's decelerating heart rate being called out. I was in my own world but later told that the room suddenly filled with all kinds of people from Neonatology. The contractions were unimaginable. Other-worldly. But unfortunately, not out of body. I was there. I felt them.
But when I was given the job to deliver my son. I summoned all of my efforts to bring him into the world before his heart rate plummeted again. I would do it for him. And damn it. I did. He was born at 12:15 a.m. on January 5th. It was also his Neonatologist's birthday. I saw him and heard his little cry before he was taken away to be intubated. He was unable to breathe on his own for ten long agonizing days. In those days, I willed him to breathe. Hour after hour. Breathe. Please, please breathe. Finally, he only needed the nasal canula but still there were so many wires. I held him at 10 days old. He was the tiniest thing I had ever seen.
His ears were not fully formed. He had no nipples on his chest yet. I was witnessing my baby's growth outside my womb. It wasn't normal. But it became my normal. I was very sick for many days requiring an emergency procedure and a blood transfusion. Truthfully, there were many hours of some days that I didn't think I'd live to see my baby grow. But once I was on my feet, although shaky still, I returned to my son's incubator to give him what strength I could muster. I sat there day after day after day. Hour after hour. Minute after minute. Hoping and praying and breathing for him. When those darn beeps and buzzers went off, I died a little each time. My heart would skip a beat. I forgot to exhale. And then, my baby would remember to breathe. And so would I.
We were 300 miles from home. I longed to leave the hospital at the end of the night after 12 hours of exhaustion and return to my own bed. To cover my head. To hide. To pray. To sleep. My husband had to return to work 300 miles back home. We discussed some issues such as a heart murmur over the phone. We faced tormenting concerns over the phone. My family traveled from Rochester NY when they could to see us. Michael returned to Buffalo on weekends. Or earlier, when major issues were tearing me down.
Nicolas slowly thrived. Very. Slowly. There were so many issues and still, we continued to receive small bits of good news each day. My MIL worked at the same hospital and so I rode in with her each day, went home for dinner and returned at night. I sat at the hospital each day. All day. By his incubator. The doctors and nurses knew me so well that they stopped asking me to leave while they did their rounds in the morning and late afternoon. I was a permanent fixture in the Neonatal Intensive Care Unit. A place that I never knew existed. It was now my home for 6 weeks. It's a place where I barely breathed. My baby barely breathed. Sometimes I can't breathe just thinking about it.
Nicolas grew. He started looking more like a baby and not so much like a sick bird. Finally our insurance company agreed to fly him back to Harrisburg PA. He flew by Lear Jet. And then was ambulanced to his next hospital where he resided for two more weeks. On February 28, Nicolas came home. I still remember that as Michael and I pulled into the parking lot at the hospital, the song "Colors of the Wind" came on the radio. We both sat there and just sobbed.
The night my baby was born, I'm told that I cried "but I just want to take him to Disney World". No one knew what to say to me. I know that now. Because no one knew.
I know now.
I know now what it's like to watch your child turn blue.
I know now what it's like to hear that your child may have a brain bleed.
I know what it's like to wait to see if your child has a heart problem.
I know now what it's like to triumph.
I know now what it's like to watch your child grow.
It'll be nine years. Soon. Very soon. I was told that my child would grow up all too fast. His birthday is hard for me. I remember the heartache and the fear. But I rejoice in our blessings. We've been fortunate. And so truly, his birthdays are a joy for me. I never thought I'd count a single one and...
"I'll never take one single breath for granted"